NEWS RELEASE - FOR IMMEDIATE RELEASE – 04/07/2015
Over 112 local runners team up to raise funds and awareness for Rare Disease Communities while participating in the Boston and Providence Marathons
Norton, MA: For the eighth consecutive year, employees of various partner companies in the Boston area will run half and full marathon races as members of the Running for Rare Diseases Marathon Team in support of programs and services of the National Organization for Rare Disorders (NORD) for individuals and families affected by rare diseases. A rare disease is defined as any disorder affecting fewer than 200,000 Americans and currently there are nearly 7,000 such diseases affecting nearly 30 million people.
What started 7 years ago as a few runners finishing the Boston Marathon, has grown into 112 runners now participating in the famous Boston Marathon and Providence half and full marathons. New England Controls, a local engineering technology company located in Mansfield, MA, is a proud supporter of the Marathon Team and has 7 employees participating in the various races.
More than just running the miles, this team is dedicated to the raising of awareness and funds for over 55 rare disease communities. The collective fundraising goal for 2015 is $250,000. Year to date, the Running for Rare Diseases team has collected over $120,000.
“Comedy for a Cure” is one of the team’s upcoming fundraisers meant to draw in the local crowd for a night of laughs, raffles, and raising awareness about all the different rare disease communities. Attendees will enjoy an evening with Boston based comedians Paul Nardizzi, featured on Conan O’Brien and the Boston Comedy Connection, Dave Rattigan, and Kristie Lavoie. Doors will open at 6:30pm at the Chateau Restaurant in Norton, MA. Tickets are $40 each or a couple’s ticket for $75 and include passed appetizers. There will be a cash bar. To purchase tickets please email [email protected] or buy online by clicking here.
You can read more about our patient partners and upcoming events on the Running for Rare Diseases Team blog at: http://running4rare.org/
A group picture of the entire Running for Rare Diseases Team from New England Controls.
About National Organization for Rare Disorders (NORD):
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is the leading voice of the rare disease community. We are a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. For more than 30 years, we have been committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
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